Patient-Caregiver Portal System in Palliative Oncology: Assessment of Usability and Perceived Benefit.
Margaret L LongacreMarcin ChwistekCynthia KeleherMark SiemonBrian L EglestonMolly CollinsCarolyn Y FangPublished in: JMIR human factors (2023)
Our findings demonstrate system usability, including a systematic way to identify caregiver needs and share with the care team in a way that is acceptable to patients and caregivers and perceived by clinicians to benefit clinical care. Integration of a patient-caregiver portal system may be an effective approach for systematically engaging caregivers. These findings highlight the need for additional research among caregivers of patients with less advanced cancer or with different illnesses.