SNAP: Supportive non-invasive ventilation for acute chest syndrome prevention for hospitalized children with sickle cell disease: Perspectives of patients, parents, and the healthcare team.
Robyn T CohenShana A B BurrowesChristopher J WilliamsCaitlin M NeriElizabeth S KlingsKayla C JonesAllan J WalkeyMari-Lynn DrainoniPublished in: Pediatric blood & cancer (2024)
SNAP is perceived as effective and appropriate for hospitalized pediatric patients with SCD. Improving the patient experience is the biggest challenge. These data will inform a future protocol for a multicenter hybrid effectiveness/implementation trial of SNAP.
Keyphrases
- healthcare
- end stage renal disease
- randomized controlled trial
- respiratory failure
- chronic kidney disease
- ejection fraction
- newly diagnosed
- systematic review
- primary care
- liver failure
- quality improvement
- social support
- mental health
- depressive symptoms
- physical activity
- clinical trial
- prognostic factors
- peritoneal dialysis
- palliative care
- electronic health record
- machine learning
- patient reported outcomes
- artificial intelligence
- aortic dissection
- phase ii