A Participatory Approach Involving Patients with Cystic Fibrosis and Healthcare Professionals for the Co-Design of an Adherence-Enhancing Intervention Toolkit.

Marie VipreyFrédéric MougeotAlexandra Lelia DimaJulie HaesebaertPauline OccelliIsabelle DurieuHeloïse RouzeQuitterie ReynaudSandrine Touzet

Published in: Patient preference and adherence (2023)

This study demonstrated that a participatory approach involving CF patients and HCP lead to the development of an adherence-enhancing intervention toolkit, using a 6-session format; the benefits of the co-designed intervention on the medication adherence have yet to be tested in a multicenter, open-label study in 3 centers in France.

Keyphrases

cystic fibrosis
randomized controlled trial
open label
newly diagnosed
ejection fraction
clinical trial
radiation therapy
prognostic factors
squamous cell carcinoma
adipose tissue
cross sectional
lung function
glycemic control
metabolic syndrome
patient reported outcomes
placebo controlled