Should heart failure be regarded as a terminal illness requiring palliative care? A study of heart failure patients', carers' and clinicians' understanding of heart failure prognosis and its management.
Rachel StockerHelen CloseHelen HancockA Pali S HunginPublished in: BMJ supportive & palliative care (2017)
This is the first study exploring the experiences of prognostic communication at all stages of HF. Findings raise questions regarding the pragmatic utility of the concept of HF as a terminal illness and have implications for future HF care pathway development. Findings support the incorporation of a problem-based approach to management, which recognises the importance of everyday functioning for patients and carers as well as the opportunity for ACP.
Keyphrases
- palliative care
- heart failure
- acute heart failure
- ejection fraction
- end stage renal disease
- advanced cancer
- healthcare
- newly diagnosed
- chronic kidney disease
- left ventricular
- mental health
- peritoneal dialysis
- prognostic factors
- randomized controlled trial
- cardiac resynchronization therapy
- study protocol
- patient reported
- chronic pain