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"Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease.

Chelsea CoumoundourosPaul FarrandRobbert SandermanLouise von EssenJoanne Woodford
Published in: BMC nephrology (2024)
In response to the challenges informal caregivers experienced when seeking support, improvements are needed to better consider informal caregiver needs within healthcare systems, and to develop interventions tailored to informal caregiver needs and context. Within the healthcare system, informal caregivers may benefit from system navigation support and better integration within healthcare teams to ensure their informational support needs are met. New interventions developed to support informal caregivers should fit within their existing support systems and incorporate the qualities of support, such as empathy, that were valued. Additionally, use of an equity framework and user-centered design approaches during intervention development could help ensure interventions are accessible and acceptable.
Keyphrases
  • healthcare
  • palliative care
  • chronic kidney disease
  • physical activity
  • randomized controlled trial
  • mental health
  • global health