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Developing a patient care pathway for emotional support around the point of multiple sclerosis diagnosis: A stakeholder engagement study.

Tierney TindallGogem TopcuShirley A ThomasClare BaleNikos EvangelouAvril E R DrummondRoshan das Nair
Published in: Health expectations : an international journal of public participation in health care and health policy (2023)
This research was conceptualized and designed collaboratively with Nottingham Multiple Sclerosis Patient and Public Involvement and Engagement (PPIE) group members. One member is a co-author and was actively involved in every key stage of the research process, including co-design of the pathway and research protocol, data collection (including presenting to participants and moderating group discussions), analysis and write-up. Authors consulted with PPIE members at two meetings (9 and 11 PPIE attendees per meeting) where they gave feedback on the research design, findings and the resulting pathway. People living with MS and carers of people with MS were included in the focus groups as participants.
Keyphrases
  • multiple sclerosis
  • mass spectrometry
  • white matter
  • social media
  • randomized controlled trial
  • electronic health record
  • big data
  • social support
  • machine learning
  • depressive symptoms
  • adverse drug