[Psychologically guided group meetings for family caregivers of ALS patients].
Elisa AustRené GüntherAndreas HermannKatharina LinsePublished in: Fortschritte der Neurologie-Psychiatrie (2023)
The ALS caregiver group meetings in the described format were easy to carry out and well accepted. Supportive interventions, such as the one reported here, might be a valuable component of ALS care, to relieve the highly burdened caregivers of ALS-patients by providing them with social, emotional and practical support. However, the quantitative verification of the intervention's effectiveness is challenging - both methodologically and due to the caregivers' complex life situation. Psychosocial support services for ALS caregivers are feasible with little effort and should be an integral part of the standard ALS care based on a multi-dimensional, palliative care concept.
Keyphrases
- palliative care
- end stage renal disease
- amyotrophic lateral sclerosis
- healthcare
- ejection fraction
- randomized controlled trial
- newly diagnosed
- mental health
- advanced cancer
- chronic kidney disease
- prognostic factors
- peritoneal dialysis
- systematic review
- quality improvement
- primary care
- physical activity
- pain management
- high resolution
- patient reported outcomes