Setting a patient-centered research agenda for cerebral palsy: a participatory action research initiative.
Paul H GrossAmy F BailesSusan D HornEdward A HurvitzJacob KeanMichele Shustermannull nullPublished in: Developmental medicine and child neurology (2018)
A patient-centered research agenda for cerebral palsy was established. Comparative effectiveness of interventions, physical activity, and understanding ageing were leading themes. Longitudinal studies across the lifespan, clinical spectrum, and ages were highly ranked. Participants reported high value for participation outcomes. Participants reported great appreciation for the engagement between consumers and clinician researchers.