Living with a child who has a life-limiting condition: The functioning of well-siblings and parents.
Tiina JaanisteAnjali CuganesanWei Ling Audrey ChinSarah Caellainn TanSandra CoombsMaria HeatonSue CowanPhillip AouadDenise PotterPhilippa Louise SmithSusan TrethewiePublished in: Child: care, health and development (2021)
Family members living with a child who has an LLC were found to have significantly poorer psychosocial functioning than published norms. Although one cannot infer a causal direction from the current study, greater self-reported well-sibling and parental resilience were associated with aspects of better self-reported psychosocial functioning. Future studies should assess the impact of psychosocial interventions aimed at enhancing the resilience and functioning of both well-siblings and parents.