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Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation.

Carolyn Emily SchwartzRoland B StarkIvana F AudhyaKatherine L Gooch
Published in: Journal of patient-reported outcomes (2021)
DMD caregivers fared worse on most outcomes and faced more hurdles in work life. They face constraints and hidden costs that impact their health and financial well-being. Caregivers of teenagers with DMD reported higher impact. Nonetheless, parents of DMD children of all ages maintained notable resilience and positivity.
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