The Global State of the Genetic Counseling Profession.
MaryAnn AbacanLamia AlsubaieKristine Barlow-StewartBeppy CaanenChristophe CordierEliza CourtneyEmeline DavoineJanice EdwardsNiby J ElackattKate GardinerYue GuanLian-Hua HuangCharlotta Ingvoldstad MalmgrenSahil KejriwalHyon J KimDeborah LambertPaulina Araceli Lantigua-CruzJuliana M H LeeMarianne LodahlÅshild LundeShelley MacaulayIvan MaccioccaSonia MargaritMiddleton AnnaRamona MoldovanJoanne NgeowAlexandra J Obregon-TitoKelly E OrmondMilena PanequeKaren PowellKunal SanghaviDiana ScotcherJenna ScottClara Serra JuhéShiri Shkedi-RafidTina-Marié WesselsSook-Yee YoonCatherine WicklundPublished in: European journal of human genetics : EJHG (2018)
The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.