"The way I am treated is as if I am under my mother's care": qualitative study of patients' experiences of receiving hospice care services in South Africa.
Konstantina VasileiouPaula SmithAshraf KageePublished in: BMC palliative care (2020)
Receiving hospice care that sensitively attends to patients' psychosocial and physical needs helps people to re-create a sense of homeliness within the world, re-orient themselves toward a meaningful life and re-configure their relationship with self. Patient experience of receiving hospice care in South Africa does not appear dissimilar to that reported by patients in resource-rich countries, suggesting underlying commonalities. There is a need for raising awareness and educating the public about what palliative care can offer to those in need. Public health campaigns could help reduce the stigma attached to palliative care, deflect negative perceptions, and communicate the benefits for patients, families and communities in culturally sensitive ways.
Keyphrases
- palliative care
- healthcare
- end stage renal disease
- south africa
- advanced cancer
- public health
- newly diagnosed
- chronic kidney disease
- ejection fraction
- prognostic factors
- peritoneal dialysis
- emergency department
- quality improvement
- physical activity
- chronic pain
- hiv positive
- patient reported outcomes
- pain management
- depressive symptoms
- men who have sex with men
- electronic health record
- social support