SNAP: Supportive non-invasive ventilation for acute chest syndrome prevention for hospitalized children with sickle cell disease: Perspectives of patients, parents, and the healthcare team.
Robyn T CohenShana A B BurrowesChristopher J WilliamsCaitlin M NeriElizabeth S KlingsKayla C JonesAllan J WalkeyMari-Lynn DrainoniPublished in: Pediatric blood & cancer (2024)
SNAP is perceived as effective and appropriate for hospitalized pediatric patients with SCD. Improving the patient experience is the biggest challenge. These data will inform a future protocol for a multicenter hybrid effectiveness/implementation trial of SNAP.
Keyphrases
- healthcare
- randomized controlled trial
- end stage renal disease
- respiratory failure
- newly diagnosed
- ejection fraction
- chronic kidney disease
- systematic review
- primary care
- liver failure
- clinical trial
- young adults
- study protocol
- quality improvement
- physical activity
- cross sectional
- electronic health record
- hepatitis b virus
- patient reported outcomes
- phase iii
- patient reported
- intensive care unit
- social media
- aortic dissection
- acute respiratory distress syndrome
- artificial intelligence
- affordable care act
- placebo controlled