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Parents' and children's comprehension and decision in a paediatric early phase oncology trial: a prospective study.

Agathe BérangerNaïm BouazzaAmélie de Haut de SigyAnne-Charlotte Foubert-WencDominique DavousIsabelle AertsBirgit GeoergerAnne AuvrignonBenoît BrethonPierre LeblondNadège CorradiniNicolas AndréHélène MartinezJean-Claude K DupontFrançois DozHélène Chappuy
Published in: Archives of disease in childhood (2018)
What might appear to be a poor understanding of the research protocol may actually correspond to the families' interpretation of the situation as a coping mechanism. All children (except infants) should get age-tailored information in order for them to have a meaningful involvement in research.
Keyphrases
  • young adults
  • randomized controlled trial
  • intensive care unit
  • depressive symptoms
  • clinical trial
  • palliative care
  • study protocol
  • emergency department
  • social support
  • health information
  • smoking cessation