Parents' and children's comprehension and decision in a paediatric early phase oncology trial: a prospective study.
Agathe BérangerNaïm BouazzaAmélie de Haut de SigyAnne-Charlotte Foubert-WencDominique DavousIsabelle AertsBirgit GeoergerAnne AuvrignonBenoît BrethonPierre LeblondNadège CorradiniNicolas AndréHélène MartinezJean-Claude K DupontFrançois DozHélène ChappuyPublished in: Archives of disease in childhood (2018)
What might appear to be a poor understanding of the research protocol may actually correspond to the families' interpretation of the situation as a coping mechanism. All children (except infants) should get age-tailored information in order for them to have a meaningful involvement in research.