Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey).
Dolf de BoerMichael van den BergMarta BallesterJanika BloemekeWienke BoermaKatherine de BienassisPeter GroenewegenOliver GroeneCandan KendirNiek KlazingaIan PorterRosa SunolLaura ThomasJose Maria ValderasRachel WilliamsMieke RijkenPublished in: BMJ open (2022)
Informed consent will be obtained from primary care providers and service users. National Project Managers search ethical approval of the survey in their country, if required. Reporting by the OECD will focus on questions for international comparison. A secured information technology platform will be developed for participants and stakeholders in countries to receive feedback and answer their own questions. Findings will also be disseminated through an international OECD flagship report, conferences, scientific papers and policy briefs, to inform strategies to improve care for people living with chronic conditions throughout the world.
Keyphrases
- healthcare
- primary care
- quality improvement
- mental health
- public health
- study protocol
- cross sectional
- palliative care
- randomized controlled trial
- clinical trial
- drug induced
- high throughput
- pain management
- metabolic syndrome
- health information
- social media
- weight loss
- glycemic control
- double blind
- single cell
- drug administration