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Assessing the health impacts of parenthood on people with cystic fibrosis: the HOPeCF prospective cohort protocol.

Traci M KazmerskiOlivia M StranskyMinJae LeeKelly A PrangleyRaksha JainAnna M GeorgiopoulosDaniel S ShawJennifer Taylor-Cousar
Published in: BMJ open respiratory research (2024)
This longitudinal, observational multicentre study is a necessary and timely step in understanding parental health outcomes in CF and will provide data essential for care guidance to people with CF, their partners, and healthcare providers. The University of Pittsburgh Institutional Review Board approved this study (STUDY23080161). As people with a variety of paediatric-onset chronic diseases are living longer and considering parenthood, these results may have widespread applicability and will be distributed at international meetings and submitted to peer-reviewed journals.
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