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The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia.

Mark W SkinnerC Chai-AdisaksophaR CurtisN FrickM NicholD NooneB O'MahonyD PageJ S StonebrakerA Iorio
Published in: Pilot and feasibility studies (2018)
Trial registration: NCT02439710.
Keyphrases
  • patient reported outcomes
  • quality improvement
  • study protocol
  • phase iii
  • mental health
  • clinical trial
  • phase ii
  • quantum dots
  • living cells
  • psychometric properties
  • randomized controlled trial
  • patient reported