We recommend family-based approaches to medical decision-making and goals of care conversations with persons with CF and their partners, aligning those approaches with supportive and collaborative coping configurations. This may improve psychosocial outcomes for patients and their partners.
Keyphrases
- cystic fibrosis
- healthcare
- end stage renal disease
- decision making
- depressive symptoms
- hiv testing
- social support
- ejection fraction
- newly diagnosed
- quality improvement
- chronic kidney disease
- palliative care
- pseudomonas aeruginosa
- peritoneal dialysis
- prognostic factors
- lung function
- men who have sex with men
- public health
- metabolic syndrome
- insulin resistance
- skeletal muscle
- air pollution
- global health
- antiretroviral therapy