Social support among chronically ill adolescent and young adult patients using a hospital-based online health community as part of a palliative care program: A qualitative study.
Kelsea LeBeauJayne-Marie RaponiDrew WalkerAnna SwygertEmily MarchiPublished in: Palliative & supportive care (2024)
especially unique is its virtual delivery, wherein AYAs can conveniently maintain beneficial relationships with other chronically ill same-aged peers. AYAs need spaces where they can feel normal and access continuous support, both within and beyond inpatient admissions. This study enhances our understanding of online AYA psychosocial support programs. Findings can be used by healthcare professionals to implement similar palliative care and psychosocial support programs.
Keyphrases
- palliative care
- mental health
- social support
- young adults
- public health
- advanced cancer
- end stage renal disease
- health information
- depressive symptoms
- healthcare
- ejection fraction
- social media
- chronic kidney disease
- newly diagnosed
- prognostic factors
- peritoneal dialysis
- quality improvement
- patient reported outcomes
- risk assessment
- climate change
- childhood cancer
- acute care