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Using Discrete-Choice Experiment Methods to Estimate the Value of Informal Care: The Case of Children with Intellectual Disability.

Sheena AroraStephen GoodallRosalie VineyStewart Einfeld
Published in: PharmacoEconomics (2020)
A representative sample of 198 caregivers completed the survey (response rate 52%). Participants were recruited in Australia. Overall, caregivers would accept a minimum of Australian dollars ($A)20.61 to provide 1 h of care. The preferences for assistance varied significantly with different types of care tasks. Individuals placed the highest value on receiving assistance with social support ($A35.96) and the least value on receiving assistance with household errands ($A-0.92) CONCLUSIONS: This study produces a value of informal care provided to children with ID that can be directly applied in economic evaluations. The study shows that informal care tasks are not valued equally. Caregivers placed the most value on receiving assistance with social support, which may reflect the time spent by caregivers on these tasks.
Keyphrases
  • palliative care
  • social support
  • healthcare
  • depressive symptoms
  • intellectual disability
  • quality improvement
  • working memory
  • young adults
  • pain management
  • affordable care act
  • autism spectrum disorder
  • cross sectional