Evaluation of caregiver burden and coping strategies in parents of paediatric familial Mediterranean fever patients in relation to illness severity, therapy and health-related quality of life.
Deniz Gezgin YıldırımSevcan A BakkalogluA. Şebnem Soysal AcarBulent CelikNecla BuyanPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
As the caregiver burden increases, parents tend to use a dysfunctional coping strategy. Good control of disease activity with administration of medical therapy can reduce the disease severity, thereby decrease the caregiver burden, and secondly help to reduce the usage of dysfunctional coping in caregivers.
Keyphrases
- disease activity
- social support
- depressive symptoms
- end stage renal disease
- rheumatoid arthritis
- systemic lupus erythematosus
- chronic kidney disease
- rheumatoid arthritis patients
- ejection fraction
- healthcare
- peritoneal dialysis
- newly diagnosed
- intensive care unit
- ankylosing spondylitis
- emergency department
- risk factors
- juvenile idiopathic arthritis
- prognostic factors
- palliative care
- early onset
- patient reported outcomes
- patient reported