Navigating a "Good Death" During COVID-19: Understanding Real-Time End-of-Life Care Structures, Processes, and Outcomes through Clinical Notes.
Emily C FranzosaPatricia S KimLaura T MoreinesMargaret V McDonaldDaniel DavidJonelle BoafoDena Schulman-GreenAbraham A BrodyMelissa D AldridgePublished in: The Gerontologist (2024)
Care processes were negotiated throughout end-of-life, with clinicians and families making in-the-moment decisions. Some adaptations were effective but also placed extraordinary pressure on paid and family caregivers. Health care teams' and families' goals to meet patients' end-of-life priorities can be supported by ongoing assessment of patient goals and process changes needed to support them, stronger structural supports for paid and family caregivers, incentivizing relationships across primary care and hospice teams, and extending social work and spiritual care.
Keyphrases
- healthcare
- palliative care
- primary care
- end stage renal disease
- advanced cancer
- chronic kidney disease
- newly diagnosed
- ejection fraction
- quality improvement
- affordable care act
- peritoneal dialysis
- prognostic factors
- case report
- high resolution
- mental health
- global health
- pain management
- skeletal muscle
- adipose tissue
- health insurance
- chronic pain