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Navigating a "Good Death" During COVID-19: Understanding Real-Time End-of-Life Care Structures, Processes, and Outcomes through Clinical Notes.

Emily C FranzosaPatricia S KimLaura T MoreinesMargaret V McDonaldDaniel DavidJonelle BoafoDena Schulman-GreenAbraham A BrodyMelissa D Aldridge
Published in: The Gerontologist (2024)
Care processes were negotiated throughout end-of-life, with clinicians and families making in-the-moment decisions. Some adaptations were effective but also placed extraordinary pressure on paid and family caregivers. Health care teams' and families' goals to meet patients' end-of-life priorities can be supported by ongoing assessment of patient goals and process changes needed to support them, stronger structural supports for paid and family caregivers, incentivizing relationships across primary care and hospice teams, and extending social work and spiritual care.
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