Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease.
Miriam J JohnsonArmita JamaliJoy RossCaroline FairhurstJason BolandCarla ReigadaSimon Paul HartGunn GrandeDavid C CurrowAthol U WellsSabrina BajwahThanos PapadopoulosJ Martin BlandJanelle YorkePublished in: Thorax (2017)
The inter-rater/test-retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George's Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test-retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall's tau-b, 0.24-20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23-20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.
Keyphrases
- interstitial lung disease
- systemic sclerosis
- rheumatoid arthritis
- idiopathic pulmonary fibrosis
- palliative care
- case report
- randomized controlled trial
- multiple sclerosis
- primary care
- healthcare
- systematic review
- nuclear factor
- cross sectional
- immune response
- metabolic syndrome
- cerebrospinal fluid
- quality improvement
- skeletal muscle
- insulin resistance
- inflammatory response
- toll like receptor
- psychometric properties