Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.

Isolde A R Kuijlaars Janjaap van der NetVanessa BouskillPamela HilliardAgne JuodyteKate Khair Sonata Saulyte Trakymiene Kathelijn Fischer

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2021)

This clinimetric study resulted in >50% reduction of the length of the pedHAL. The 22-item pedHALshort reduces patient burden and is expected to capture the information on activities and participation. The pedHALshort needs validation in other populations.

Keyphrases

intensive care unit
emergency department
case report
physical activity
electronic health record
randomized controlled trial
big data
risk factors
phase iii
study protocol
artificial intelligence