Isolde A R Kuijlaars (I A R Kuijlaars)

Publication Activity (10 Years)

Years Active: 2017-2022
Publications (10 Years): 10

Top Topics

Clinical Evaluation

Psychometric Properties

Health Information

Top Venues

Haemophilia : the official journal of the World Federation of Hemophilia

Journal of medical Internet research

Research and practice in thrombosis and haemostasis

British journal of haematology

This page only lists publications with an associated author ORCID identifier.

Publications

Isolde A R Kuijlaars, Janjaap van der Net, Lize F D van Vulpen, Mariette H E Driessens, Saskia E M Schols, Melanie Tan, Samantha C Gouw, Kathelijn Fischer
Validation of the pedHAL short and HAL short in Dutch children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 28 (6) (2022)
Wobke E M van Dijk, Adriaan Penson, Isolde A R Kuijlaars, Monique Suijker, Karin P M van Galen, Hans Knoop, Roger E G Schutgens
Checklist Individual Strength to measure severe fatigue in immune thrombocytopenia. British journal of haematology 197 (3) (2022)
Isolde A R Kuijlaars, Janjaap van der Net, Tyler W Buckner, Christine L Kempton, Roger E G Schutgens, Kathelijn Fischer
Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items. Haemophilia : the official journal of the World Federation of Hemophilia 27 (6) (2021)
Isolde A R Kuijlaars, Janjaap van der Net, Vanessa Bouskill, Pamela Hilliard, Agne Juodyte, Kate Khair, Sonata Saulyte Trakymiene, Kathelijn Fischer
Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies. Haemophilia : the official journal of the World Federation of Hemophilia 27 (2) (2021)
Isolde A R Kuijlaars, Lorynn Teela, Lize F D van Vulpen, Merel A Timmer, Michiel Coppens, Samantha C Gouw, Marjolein Peters, Marieke J H A Kruip, Marjon H Cnossen, Jelmer J Muis, Evelien S van Hoorn, Lotte Haverman, Kathelijn Fischer
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance. Research and practice in thrombosis and haemostasis 5 (8) (2021)
Isolde A R Kuijlaars, Madelon van Emst, Janjaap van der Net, Merel A Timmer, Kathelijn Fischer
Assessing the test-retest reliability and smallest detectable change of the Haemophilia Activities List. Haemophilia : the official journal of the World Federation of Hemophilia 27 (1) (2020)
Isolde A R Kuijlaars, Janjaap van der Net, Brian M Feldman, Magnus Aspdahl, Melanie Bladen, Wypke de Boer, Cuesta-Barriuso R, Ruth Elise D Matlary, Sharon M Funk, Pamela Hilliard, Judy A John, Christine L Kempton, Piet de Kleijn, Marilyn J Manco-Johnson, Pia Petrini, Pradeep Mathew Poonnoose, Jean St-Louis, Sylvia Thomas, Merel A Timmer, Sonata Saulyte Trakymiene, Leo van Vlimmeren, Kathelijn Fischer
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS. Haemophilia : the official journal of the World Federation of Hemophilia 26 (6) (2020)
Merel A Timmer, Corelien J J Kloek, Piet de Kleijn, Isolde A R Kuijlaars, Roger E G Schutgens, Cindy Veenhof, Martijn F Pisters
A Blended Physiotherapy Intervention for Persons With Hemophilic Arthropathy: Development Study. Journal of medical Internet research 22 (6) (2020)
Isolde A R Kuijlaars, Janjaap van der Net, Roger E G Schutgens, Kathelijn Fischer
The Paediatric Haemophilia Activities List (pedHAL) in routine assessment: changes over time, child-parent agreement and informative domains. Haemophilia : the official journal of the World Federation of Hemophilia 25 (6) (2019)
Isolde A R Kuijlaars, Merel A Timmer, P de Kleijn, M F Pisters, Kathelijn Fischer
Monitoring joint health in haemophilia: Factors associated with deterioration. Haemophilia : the official journal of the World Federation of Hemophilia 23 (6) (2017)