The 'experimental public' in longitudinal health research: views of local leaders and service providers in rural South Africa.
Rhine TwineGillian Lewando HundtKathleen KahnPublished in: Global health research and policy (2017)
This experimental public has, over time, developed a nuanced understanding of the reasons for research and the procedures undertaken. Discussions concerning fair benefit ranged from requests for more individual clinically-relevant results for participants, to understanding how research results could assist in planning of public health services at local and national levels. The concerns illustrate the complexity of the ethics of practice which has implications for policy, practice and governance for those working in longitudinal health research sites globally.