Living with faecal incontinence: a qualitative investigation of patient experiences and preferred outcomes through semi-structured interviews.
Sadé L AssmannDaniel KeszthelyiStephanie O BreukinkMerel L KimmanPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
The impact of FI extends far beyond uncontrolled loss of faeces, affecting psychological, emotional, and social wellbeing. Patients prioritise outcomes focussed on reclaiming normalcy and independence rather than focusing on physical symptoms alone. Integrating these patient-centered outcomes in future studies could enhance treatment satisfaction and patient-perceived treatment success. Furthermore, the outcomes identified in this study can be included in a Delphi survey alongside other relevant outcomes, paving the way for the development of a COS.