Patient-centred care in haemophilia: Patient perspectives on visualization and participation in decision-making.

Erna C van BalenMarian KrawczykDeborah GueShannon JacksonSamantha C Gouw Johanna van der BomRichard Sawatzky

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

Participants perceived the patient-centred prophylaxis approach helpful because it enhanced communication with the Clinic Team, increased their understanding of haemophilia and pharmacokinetics of coagulation factor and facilitated treatment decisions.

Keyphrases

case report
palliative care
decision making
physical activity
healthcare
primary care
mental health
pain management
combination therapy