Samantha C Gouw (Samantha Gouw, S C Gouw)

Publication Activity (10 Years)

Years Active: 2018-2024
Publications (10 Years): 30

Top Topics

Systematic Review

Cardiovascular Risk Factors

Top Venues

Haemophilia : the official journal of the World Federation of Hemophilia

Journal of thrombosis and haemostasis : JTH

Journal of medical Internet research

Research and practice in thrombosis and haemostasis

This page only lists publications with an associated author ORCID identifier.

Publications

Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna van der Bom, Marjon H Cnossen, Karin C J Fijnvandraat, Samantha C Gouw
Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study. JMIR human factors 11 (2024)
Tessa C M van Gastel, Lorynn Teela, Evelien P Mauser-Bunschoten, Michiel Coppens, Marjolein Peters, Karin C J Fijnvandraat, Lotte Haverman, Samantha C Gouw
Sexual functioning in men with haemophilia: Data from the haemophilia in the Netherlands-6 study. Haemophilia : the official journal of the World Federation of Hemophilia (2024)
Ricardo Mesquita Camelo, Camila Caram-Deelder, Bruna Pontes Duarte, Marilia Carolina Braga de Moura, Neuza Cavalcanti de Moraes Costa, Íris Maciel Costa, Ana Maria Vanderlei, Tania Maria Rocha Guimaraes, Samantha C Gouw, Suely Meireles Rezende, Johanna van der Bom
Cardiovascular Risk Scores among Asymptomatic Adults with Haemophilia. Arquivos brasileiros de cardiologia 120 (9) (2023)
Martijn R Brands, Ebony A M Janssen, Marjon H Cnossen, Cees Smit, Lize F D van Vulpen, Paul van der Valk, Jeroen C J Eikenboom, Floor C J I Heubel-Moenen, Louise Hooimeijer, Paula F Ypma, Laurens Nieuwenhuizen, Michiel Coppens, Saskia E M Schols, Britta A P Laros-van Gorkom, Frank W G Leebeek, Mariëtte H E Driessens, Frits Richard Rosendaal, Johanna van der Bom, Karin C J Fijnvandraat, Samantha C Gouw
Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study. Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Marjon H Cnossen, Iris van Moort, Simone H Reitsma, Moniek P M de Maat, Roger E G Schutgens, Rolf T Urbanus, Hester Floor Lingsma, Ron A A Mathot, Samantha C Gouw, Karina Meijer, Annelien L Bredenoord, Rieke van der Graaf, Karin C J Fijnvandraat, Alexander Benjamin Meijer, Emile van den Akker, Ruben Bierings, Jeroen C J Eikenboom, Maartje van den Biggelaar, Masja De Haas, Jan Voorberg, Frank W G Leebeek, null null
SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders. Journal of thrombosis and haemostasis : JTH (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Anne-Fleur Zwagemaker, Fabienne R Kloosterman, Michiel Coppens, Samantha C Gouw, Sara Boyce, Catherine N Bagot, Erik A M Beckers, Paul Brons, Giancarlo Castaman, Jeroen C J Eikenboom, Shannon Jackson, Marieke J H A Kruip, Frank W G Leebeek, Karina Meijer, Laurens Nieuwenhuizen, Ingrid Pabinger-Fasching, Karin C J Fijnvandraat, null null
Desmopressin for bleeding in non-severe hemophilia A: Suboptimal use in a real-world setting. Research and practice in thrombosis and haemostasis 6 (6) (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Erna C van Balen, Shermarke Hassan, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Saskia E M Schols, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study. Research and practice in thrombosis and haemostasis 6 (6) (2022)
Isolde A R Kuijlaars, Janjaap van der Net, Lize F D van Vulpen, Mariette H E Driessens, Saskia E M Schols, Melanie Tan, Samantha C Gouw, Kathelijn Fischer
Validation of the pedHAL short and HAL short in Dutch children and adults with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 28 (6) (2022)
Martijn R Brands, Samantha C Gouw, Molly Beestrum, Robert Michael Cronin, Karin C J Fijnvandraat, Sherif M Badawy
Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review. Journal of medical Internet research 24 (12) (2022)
Anne-Fleur Zwagemaker, Fabienne R Kloosterman, Robert Hemke, Samantha C Gouw, Michiel Coppens, Lorenzo G R Romano, Marieke J H A Kruip, Marjon H Cnossen, Frank W G Leebeek, Barbara A Hutten, Mario Maas, Karin C J Fijnvandraat
Joint status of patients with nonsevere hemophilia A. Journal of thrombosis and haemostasis : JTH 20 (5) (2022)
Fabienne R Kloosterman, Anne-Fleur Zwagemaker, Catherine N Bagot, Erik A M Beckers, Giancarlo Castaman, Marjon H Cnossen, Peter W Collins, Charles R M Hay, Michel Hof, Britta Laros-van Gorkom, Frank W G Leebeek, Christoph Male, Karina Meijer, Ingrid Pabinger, Susan Shapiro, Michiel Coppens, Karin C J Fijnvandraat, Samantha C Gouw
The bleeding phenotype in people with nonsevere hemophilia. Blood advances 6 (14) (2022)
Ricardo Mesquita Camelo, Maíse Moreira Dias, Camila Caram-Deelder, Samantha C Gouw, Laura Peixoto de Magalhães, Luciana Werneck Zuccherato, Letícia Lemos Jardim, Andrea Gonçalves de Oliveira, Rosângela de Albuquerque Ribeiro, Vivian Karla Brognoli Franco, Maria do Rosário Ferraz Roberti, Fábia Michelle Rodrigues de Araújo Callado, Leina Yukari Etto, Maria Aline Ferreira de Cerqueira, Mônica Hermida Cerqueira, Claudia Santos Lorenzato, Ieda Solange de Souza, Édvis Santos Soares Serafim, Andrea Aparecida Garcia, Tânia Hissa Anegawa, Daniele Campos Fontes Neves, Doralice Marvulle Tan, Johanna van der Bom, Suely Meireles Rezende, null null
Time between inhibitor detection and start of immune tolerance induction: Association with outcome in the BrazIT study. Journal of thrombosis and haemostasis : JTH 20 (11) (2022)
Johanna Wilhelmina Hoefnagels, Liesbeth Hélène Schrijvers, Frank W G Leebeek, Jeroen C J Eikenboom, Saskia E M Schols, Cees Smit, Roger E G Schutgens, Samantha C Gouw, Kathelijn Fischer, null null
Adherence to prophylaxis and its association with activation of self-management and treatment satisfaction. Haemophilia : the official journal of the World Federation of Hemophilia 27 (4) (2021)
Shermarke Hassan, Erna C van Balen, Cees Smit, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Jeroen C J Eikenboom, Erik A M Beckers, Louise Hooimeijer, Paula F Ypma, Laurens Nieuwenhuizen, Michiel Coppens, Saskia E M Schols, Frank W G Leebeek, Mariëtte H Driessens, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Health and treatment outcomes of patients with hemophilia in the Netherlands, 1972-2019. Journal of thrombosis and haemostasis : JTH 19 (10) (2021)
Johanna Wilhelmina Hoefnagels, Olav Versloot, Liesbeth H Schrijvers, Janjaap van der Net, Frank W G Leebeek, Samantha C Gouw, Kathelijn Fischer, null null
Sports participation is not associated with adherence to prophylaxis in Dutch patients with haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 27 (3) (2021)
Erna C van Balen, Marjolein L Wesselo, Bridget L Baker, Marjan J Westerman, Michiel Coppens, Cees Smit, Mariëtte H E Driessens, Frank W G Leebeek, Johanna van der Bom, Samantha C Gouw
Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study. The patient 13 (2) (2021)
Ricardo Mesquita Camelo, Camila Caram-Deelder, Bruna Pontes Duarte, Marilia Carolina Braga de Moura, Neuza Cavalcanti de Moraes Costa, Íris Maciel Costa, Carlos Guilherme Piscoya Roncal, Ana Maria Vanderlei, Tania Maria Rocha Guimaraes, Samantha C Gouw, Suely Meireles Rezende, Johanna van der Bom
Cardiovascular risk factors among adult patients with haemophilia. International journal of hematology 113 (6) (2021)
Cas J Isfordink, Samantha C Gouw, Erna C van Balen, Shermarke Hassan, Erik A M Beckers, Johanna G van der Bom, Michiel Coppens, Jeroen C J Eikenboom, Kathelijn Fischer, Louise Hooimeijer, Frank W G Leebeek, Frits R Rosendaal, Saskia E M Schols, Cees Smit, Lize F D van Vulpen, Eveline P Mauser-Bunschoten
Hepatitis C virus in hemophilia: Health-related quality of life after successful treatment in the sixth Hemophilia in the Netherlands study. Research and practice in thrombosis and haemostasis 5 (8) (2021)
Fabienne R Kloosterman, Amal Abdi, Samantha C Gouw, Daniel P Hart, Karin Fijnvandraat
The factor VIII treatment history of non-severe hemophilia A-Response from original authors Abdi et al. Journal of thrombosis and haemostasis : JTH 19 (10) (2021)
Erna C van Balen, Lotte Haverman, Shermarke Hassan, Elisabeth M Taal, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Lize F D van Vulpen, Saskia E M Schols, Caroline B Terwee, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. Journal of thrombosis and haemostasis : JTH 19 (11) (2021)
Isolde A R Kuijlaars, Lorynn Teela, Lize F D van Vulpen, Merel A Timmer, Michiel Coppens, Samantha C Gouw, Marjolein Peters, Marieke J H A Kruip, Marjon H Cnossen, Jelmer J Muis, Evelien S van Hoorn, Lotte Haverman, Kathelijn Fischer
Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance. Research and practice in thrombosis and haemostasis 5 (8) (2021)
Shermarke Hassan, Rory C Monahan, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Jeroen C J Eikenboom, Erik A M Beckers, Louise Hooimeijer, Paula F Ypma, Laurens Nieuwenhuizen, Michiel Coppens, Saskia E M Schols, Frank W G Leebeek, Cees Smit, Mariëtte H Driessens, Saskia le Cessie, Erna C van Balen, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001-2018. Journal of thrombosis and haemostasis : JTH 19 (3) (2020)
Erna C van Balen, Marian Krawczyk, Deborah Gue, Shannon Jackson, Samantha C Gouw, Johanna van der Bom, Richard Sawatzky
Patient-centred care in haemophilia: Patient perspectives on visualization and participation in decision-making. Haemophilia : the official journal of the World Federation of Hemophilia 25 (6) (2019)
Erna C van Balen, Samantha C Gouw, Jan A Hazelzet, Johanna van der Bom, Marjon H Cnossen
Defining patient value in haemophilia care. Haemophilia : the official journal of the World Federation of Hemophilia 24 (4) (2019)
Anne-Fleur Zwagemaker, Samantha C Gouw, C Valk, W Ganzevoort, M Coppens, M Peters
Postpartum haemorrhage in an unselected cohort of carriers of haemophilia. Haemophilia : the official journal of the World Federation of Hemophilia 24 (4) (2018)