Erna C van Balen (E C van Balen)

Publication Activity (10 Years)

Years Active: 2019-2022
Publications (10 Years): 9

Top Topics

Clinical Evaluation

Cross Sectional

Top Venues

Journal of thrombosis and haemostasis : JTH

Haemophilia : the official journal of the World Federation of Hemophilia

Research and practice in thrombosis and haemostasis

This page only lists publications with an associated author ORCID identifier.

Publications

Erna C van Balen, Shermarke Hassan, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Saskia E M Schols, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study. Research and practice in thrombosis and haemostasis 6 (6) (2022)
Shermarke Hassan, Erna C van Balen, Cees Smit, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Jeroen C J Eikenboom, Erik A M Beckers, Louise Hooimeijer, Paula F Ypma, Laurens Nieuwenhuizen, Michiel Coppens, Saskia E M Schols, Frank W G Leebeek, Mariëtte H Driessens, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Health and treatment outcomes of patients with hemophilia in the Netherlands, 1972-2019. Journal of thrombosis and haemostasis : JTH 19 (10) (2021)
Erna C van Balen, Marjolein L Wesselo, Bridget L Baker, Marjan J Westerman, Michiel Coppens, Cees Smit, Mariëtte H E Driessens, Frank W G Leebeek, Johanna van der Bom, Samantha C Gouw
Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study. The patient 13 (2) (2021)
Olav Versloot, Erna C van Balen, Shermarke Hassan, Saskia E M Schols, Frank W G Leebeek, Jeroen Eikenboom, Michiel Coppens, Lize F D van Vulpen, Cees Smit, Mariëtte H E Driessens, Janjaap van der Net, Samantha C Gouw, Kathelijn Fischer, null null
Similar sports participation as the general population in Dutch persons with haemophilia; results from a nationwide study. Haemophilia : the official journal of the World Federation of Hemophilia 27 (5) (2021)
Erna C van Balen, Lotte Haverman, Shermarke Hassan, Elisabeth M Taal, Cees Smit, Mariëtte H E Driessens, Erik A M Beckers, Michiel Coppens, Jeroen C J Eikenboom, Hélène L Hooimeijer, Frank W G Leebeek, Lize F D van Vulpen, Saskia E M Schols, Caroline B Terwee, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. Journal of thrombosis and haemostasis : JTH 19 (11) (2021)
Erna C van Balen, Brian O'Mahony, Marjon H Cnossen, Gerard Dolan, Victor S Blanchette, Kathelijn Fischer, Deborah Gue, Jamie O'Hara, Alfonso Iorio, Shannon Jackson, Barbara A Konkle, Diane J Nugent, Donna Coffin, Mark W Skinner, Cees Smit, Alok Srivastava, Fred van Eenennaam, Johanna G van der Bom, Samantha C Gouw
Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set. Research and practice in thrombosis and haemostasis 5 (4) (2021)
Shermarke Hassan, Rory C Monahan, Evelien P Mauser-Bunschoten, Lize F D van Vulpen, Jeroen C J Eikenboom, Erik A M Beckers, Louise Hooimeijer, Paula F Ypma, Laurens Nieuwenhuizen, Michiel Coppens, Saskia E M Schols, Frank W G Leebeek, Cees Smit, Mariëtte H Driessens, Saskia le Cessie, Erna C van Balen, Frits Richard Rosendaal, Johanna van der Bom, Samantha C Gouw
Mortality, life expectancy, and causes of death of persons with hemophilia in the Netherlands 2001-2018. Journal of thrombosis and haemostasis : JTH 19 (3) (2020)
Erna C van Balen, Marian Krawczyk, Deborah Gue, Shannon Jackson, Samantha C Gouw, Johanna van der Bom, Richard Sawatzky
Patient-centred care in haemophilia: Patient perspectives on visualization and participation in decision-making. Haemophilia : the official journal of the World Federation of Hemophilia 25 (6) (2019)
Erna C van Balen, Samantha C Gouw, Jan A Hazelzet, Johanna van der Bom, Marjon H Cnossen
Defining patient value in haemophilia care. Haemophilia : the official journal of the World Federation of Hemophilia 24 (4) (2019)