Competence and Compassion: Key Elements of Professional Care at the End of Life From Caregiver's Perspective.
Ángela María Ortega-GalánMaría Dolores Ruiz-FernandezMaría Inés Carmona-RegaJosé Cabrera-TroyaRocío Ortíz-AmoOlivia Ibáñez-MaseroPublished in: The American journal of hospice & palliative care (2018)
In the act of caring for and helping people in the end-of-life process, the professional who provides care and assistance must know how to maintain a relationship of closeness, empathy, and compassion for the pain and suffering of the person who is going to die. The objective was to understand, elaborate on, and characterize the key elements of end-of-life care of patients from a caregiver's perspective through a qualitative phenomenological multicenter study. Participants were caregivers who had lost a family member at least 2 months but less than 2 years in the past. The techniques used were 5 discussion groups and 41 in-depth interviews, which included a total of 81 participants. To analyze the information, a protocol developed by Giorgi was followed. Two dimensions or units of meaning, with subdimensions, emerged: (1) Technical competence, with the subdimensions "Control of symptoms" and "Continuity of care," and (2) Compassion, with the subdimensions "Effective/affective communication," "Attitudes of kindness and closeness toward the patient and the family," and "Generosity and personalized flexibility of care." Assistance at the end of life requires the proper preparation of professionals who care for these patients, in addition to a compassionate attitude on the part of professionals and the people accompanying the dying person, that fosters a more humanized and dignified treatment in the dying process.
Keyphrases
- palliative care
- healthcare
- end stage renal disease
- quality improvement
- pain management
- advanced cancer
- chronic kidney disease
- ejection fraction
- newly diagnosed
- peritoneal dialysis
- randomized controlled trial
- prognostic factors
- mass spectrometry
- patient reported outcomes
- spinal cord
- depressive symptoms
- social media
- health information
- monoclonal antibody
- postoperative pain