Pediatric patient engagement in clinical care, research and intervention development: a scoping review.
Lorynn TeelaLieke E VerhagenHedy A van OersEsmée E W KramerJoost G DaamsMariken P GruppenMaria J SantanaMartha A GrootenhuisLotte HavermanPublished in: Journal of patient-reported outcomes (2023)
This scoping review shows that there is an increasing interest in pediatric patient engagement. However, lack of uniformity about the definition of pediatric patient engagement and clear information for clinicians hinders engagement. This overview can inform clinicians and researchers about the different ways in which pediatric patient engagement can be shaped and can guide them to engage pediatric patients meaningfully in their projects.