Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study.
Kerina Helen JonesHelen DanielsEmma SquiresDavid Vincent FordPublished in: Journal of medical Internet research (2019)
This is the first known study exploring public views of access models for reusing anonymized genomic and health data in research. It indicated that people are generally amenable but prefer data safe havens because of perceived sensitivities. We recommend that public views be incorporated into guidance on models for the reuse of genomic and health data.