User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study.

Federico Germini Victoria Borg Debono David Page Victoria Zuk Alexandra Kucher Chris Cotoi Nicholas Hobson Michael Sevestre Mark W Skinner Alfonso Iorionull null

Published in: JMIR human factors (2022)

The online survey was updated successfully, and the myPROBE app was developed, with a SUS score of 85 (out of 100). The app has been released in 81 countries and 34 languages. This will facilitate data collection for research and advocacy purposes, and the use of this tool in everyday clinical practice.

Keyphrases

patient reported outcomes
clinical practice
social media
health information
cross sectional
mental health
atrial fibrillation
study protocol
living cells
big data
deep learning
artificial intelligence
double blind
fluorescent probe