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Improving continence management for people with dementia in the community in Aotearoa, New Zealand: Protocol for a mixed methods study.

Vanessa BurholtKathryn PeriSharon AwatereDeborah BalmerGary CheungJulie DaltreyJaime FearnRosemary GibsonNgaire KerseAnna Michele LawrenceTess Moeke-MaxwellErica MunroYasmin OrtonAvinesh PillaiArapera RikiLisa Ann Williams
Published in: PloS one (2023)
A four-phase mixed methods study will be delivered over three years: three phases will run concurrently, followed by a fourth transformative sequential phase. Phase 1 will identify the prevalence and incidence of incontinence for PLWD in the community using a cohort study from standardised home care interRAI assessments. Phase 2 will explore continence management for PLWD in the community through a review of clinical policies and guidance from publicly funded continence services, and qualitative focus group interviews with health professionals. Phase 3 will explore experiences, strategies, impact and consequences of promoting continence and managing incontinence for PLWD in the community through secondary data analysis of an existing carers' study, and collecting new cross-sectional and longitudinal qualitative data from Māori and non-Māori PLWD and their caregivers. In Phase 4, two adapted 3-stage Delphi processes will be used to co-produce clinical guidelines and a core outcome set, while a series of workshops will be used to co-produce caregiver resources.
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