Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science.
Vanessa R ByamsJudith R BakerCindy BaileyNathan T ConnellMelissa S CrearyRandall G CurtisAlexis DinnoChristine J GuelcherMichelle KimRoshni Daniel KulkarniSusan S LattimoreKeri L NorrisLucy RamirezMark W SkinnerSusan SymingtonPatricia TobaseEsmeralda VázquezBeth Boulden WarrenEmily WheatTyler W BucknerPublished in: Expert review of hematology (2023)
An enormous amount of work is required in the areas of HSR, DEI, and IS, which have received inadequate attention in inherited BDs. This research has great potential to evolve the experiences of PWIBD, deliver transformational community-based care, and advance health equity.