A standardized clinical database for research in Chagas disease: The NHEPACHA network.
Adriana González MartínezIrene Losada-GalvánJuan Carlos Gabaldón-FigueiraNieves Martínez-PeinadoRoberto Magalhaes SaraivaMarisa Liliana FernándezJanine M RamseyOscar Noya-GonzálezBelkisyole Alarcón de NoyaAlejandro Gabriel SchijmanSoledad BerónMarcelo AbrilJoaquim GascónSergio Sosa-EstaniMaría Jesús PinazoJulio Alonso-PadillaAlejandro Marcel Hasslocher-Morenonull nullPublished in: PLoS neglected tropical diseases (2024)
The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers.