Needs of carers participating in support groups and caring for a person with dementia: A focused ethnographic study.
Jette LauritzenErik E SørensenPreben U PedersenMerete B BjerrumPublished in: Dementia (London, England) (2022)
Carers' level of information about dementia was partly met, thereby strengthening their sense of self and joy. Maintaining shared decision-making in financial matters was viewed as an expression of respect and reciprocity. Getting acquainted with peers and dementia coordinators was viewed as emotional and social support but was also used strategically to gain easier access to health care services. By fulfilling their needs, support group meetings became meaningful, which motivated carers to continue providing care.