The Burdens of Offering: Ethical and Practical Considerations.
Roxanne E KirschJillian CoronadoPeter Paul RoeleveldJames TweddellAntonio M MottStephen J RothPublished in: World journal for pediatric & congenital heart surgery (2017)
We reflect upon highlights of a facilitated panel discussion from the 2016 Pediatric Cardiac Intensive Care Society Meeting. The session was designed to explore challenges, share practical clinical experiences, and review ethical underpinnings surrounding decisions to offer intensive, invasive therapies to patients who have a poor prognosis for survival or are likely to be burdened with multiple residual comorbidities if survival is achieved. The discussion panel was representative of a variety of disciplines including pediatric cardiology, cardiac intensive care, nursing, and cardiovascular surgery as well as different health-care delivery systems. Key issues discussed included patient's best interests, physician obligations, moral distress, and communication in the context of decisions about providing therapy for patients with a poor prognosis.
Keyphrases
- poor prognosis
- long non coding rna
- healthcare
- end stage renal disease
- mental health
- newly diagnosed
- left ventricular
- ejection fraction
- minimally invasive
- decision making
- primary care
- emergency department
- peritoneal dialysis
- free survival
- heart failure
- patient reported outcomes
- acute kidney injury
- cross sectional
- transcranial direct current stimulation
- atrial fibrillation
- working memory
- social media
- patient reported