Factors enabling transplant program participation in the scientific registry of transplant recipients (srtr) living donor collective: a national survey.

The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant centers to register candidates while the SRTR conducts follow-up. To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from 10/26/2021-12/17/2021. We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and 8 liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Collaboration and investment to overcome barriers to program LDC participation are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant. This article is protected by copyright. All rights reserved.