Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study.
Jolanda Hhm Friesen-StormsDanny Jl Quadvlieg-DelnoyRoel Jw van KampenTrudy van der WeijdenEmmylou BeekmanGerrie Jjw BoursKon-Siong G JiePublished in: Journal of patient experience (2023)
This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: "my health," "my activities," "my environment" and "my own way." Most challenges were experienced in the domain of "my health," which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.
Keyphrases
- end stage renal disease
- newly diagnosed
- ejection fraction
- healthcare
- chronic kidney disease
- physical activity
- mental health
- palliative care
- prognostic factors
- randomized controlled trial
- primary care
- patient reported outcomes
- depressive symptoms
- global health
- social media
- climate change
- health information
- sleep quality
- human health
- pain management