Piloting the use of global health measures in a Down syndrome clinic.

Stephanie L SantoroAshlee CampbellClorinda CottrellKaren DonelanBen MajewskiNicolas Michel OreskovicVasiliki PatsiogiannisAmy TorresBrian G Skotko

Published in: Journal of applied research in intellectual disabilities : JARID (2021)

In the MGH DSP, pilot global health instruments were completed by some adults with DS and caregivers, with some limitations and scores similar to the PROMIS® reference population.

Keyphrases

global health
public health
patient reported outcomes
palliative care
primary care
study protocol
randomized controlled trial
clinical trial