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Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study.

Martijn R BrandsEbony A M JanssenMarjon H CnossenCees SmitLize F D van VulpenPaul van der ValkJeroen C J EikenboomFloor C J I Heubel-MoenenLouise HooimeijerPaula F YpmaLaurens NieuwenhuizenMichiel CoppensSaskia E M ScholsBritta A P Laros-van GorkomFrank W G LeebeekMariëtte H E DriessensFrits Richard RosendaalJohanna van der BomKarin C J FijnvandraatSamantha C Gouw
Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Nearly all post-transition young adults reported they were ready for transition. Improvements were identified regarding team acquaintance and preparation for managing healthcare costs.
Keyphrases
  • young adults
  • healthcare
  • cross sectional
  • palliative care
  • social media
  • psychometric properties
  • molecularly imprinted
  • health information
  • health insurance
  • simultaneous determination
  • affordable care act