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Sickle Cell Virtual Support Group Program for Adults: An Implementation Evaluation.

Dora Clayton-JonesLee Za OngAbir K BekhetWeneaka JonesElodie OntalaSylvia PenaKiera GriffinJames GriffinEthleen PeacockKristin Haglund
Published in: Issues in mental health nursing (2023)
Sickle cell disease (SCD) is associated with medical and psychosocial challenges. SCD in adulthood is characterized by increased morbidity and mortality, vulnerability, inadequate self-management preparation, and limited social support. This study evaluated the implementation of a virtual support group during the COVID-19 pandemic using an intervention parameters framework evaluation. Participants included six adults living with SCD. Content analysis was conducted for each of the six intervention parameters, and satisfaction scores were summarized. Participants positively evaluated all intervention parameters of the virtual support group. Findings confirmed that a community-engaged intervention supports self-management and establishes key social networks for adult participants.
Keyphrases
  • randomized controlled trial
  • healthcare
  • social support
  • sickle cell disease
  • depressive symptoms
  • mental health
  • primary care
  • quality improvement
  • mass spectrometry
  • simultaneous determination