Co-designing a cancer care intervention: reflections of participants and a doctoral researcher on roles and contributions.
Mary Anne Lagmay TanayJo ArmesCatherine OakleyLesley SageDeb TannerJose RocaLiz BrysonBarbara GreenallLauren UrwinToni WyattGlenn RobertPublished in: Research involvement and engagement (2022)
Our findings show the changing perceptions of roles and contributions among participants over time. Patients typically described their role as co-designers in terms simply of sharing their experiences. In contrast, clinicians perceived themselves as co-designers because they were working with patients who were actively involved in decision-making. Levels of engagement were affected by several factors such as time and facilitation, but most participants came to view themselves as co-owners of the intervention. Overall, participants perceived their involvement as a positive experience with clinicians also reporting wider positive impacts on their clinical practice.
Keyphrases
- randomized controlled trial
- mental health
- clinical practice
- end stage renal disease
- decision making
- depressive symptoms
- social support
- ejection fraction
- palliative care
- social media
- healthcare
- physical activity
- chronic kidney disease
- magnetic resonance
- newly diagnosed
- primary care
- prognostic factors
- emergency department
- magnetic resonance imaging
- adverse drug
- health information
- contrast enhanced