Live Well, Die Well: The Development of an Online, Arts-Based Palliative Care Programme in the Shadow of the COVID-19 Pandemic.
Amanda RobertsPublished in: Omega (2021)
The Covid-19 crisis led to an increase in the 'total pain' of many terminally ill patients who faced a reduction in support, due to the temporary closure of front-line palliative day therapy services. A hospice volunteer, I instigated an online day therapy programme for patients previously attending face-to-face day therapy. Participant feedback revealed the importance of providing a space for ongoing peer support for participants' changing sense of identity, an issue for time-limited day therapy programmes. An exploration of key concepts associated with palliative care established the multiple connections between such changing identity and arts-based approaches to living well. This article charts how I used this understanding to develop an alternative, online arts-based support programme, Live well, die well. It explores the links between ongoing mutual support, arts-based activity and the reactions to a shifting identity in patients with a life-limiting illness.
Keyphrases
- palliative care
- advanced cancer
- end stage renal disease
- primary care
- healthcare
- public health
- coronavirus disease
- study protocol
- chronic kidney disease
- sars cov
- chronic pain
- randomized controlled trial
- ejection fraction
- mental health
- pain management
- single cell
- mesenchymal stem cells
- health information
- spinal cord
- smoking cessation