Does a novel community-based outpatient palliative care intervention for Parkinson's disease and related disorders improve care? Qualitative results from patients and care partners.
Meredith A BockZachary A MacchiKrista L HarrisonMaya KatzMegan DiniJacqueline JonesRoman AyeleJean S KutnerSteven Z PantilatChristine MartinStefan SillauBenzi KlugerPublished in: Palliative medicine (2024)
Clinicians caring for people with Parkinson's disease and related disorders should screen for non-motor symptoms, provide regular prognostic counseling, and refer to specialty palliative care services earlier in the course of illness. Future interventions should be designed to promote uptake of palliative care training by community neurologists and further optimize referral to and coordination with in-person or remote specialty palliative teams.
Keyphrases
- palliative care
- advanced cancer
- healthcare
- end stage renal disease
- primary care
- mental health
- ejection fraction
- randomized controlled trial
- newly diagnosed
- prognostic factors
- peritoneal dialysis
- current status
- hiv testing
- smoking cessation
- patient reported outcomes
- quality improvement
- virtual reality
- chronic pain
- depressive symptoms