The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies.
Masoume RambodNilofar PasyarFatemeh Irannejad PariziMitra EdrakiKate KhairSylvia von MackensenPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2022)
This study showed that using a virtual child disease management programme reduced burden and improved social adjustment of caregivers of children with coagulation factor deficiencies. This intervention decreased frequencies of acute pain and bleeds in children. Therefore, using this effective intervention in clinical practice is warranted to decrease the caregivers' burden as well as acute pain and bleeds in children.