Promoting equity, diversity, and inclusion in surveys: insights from a patient-engaged study to assess long COVID health-care needs in Brazil.
Bárbara CaldasMargareth PortelaElisabeth StelsonSara SingerThatiana AmaralCledir AmaralClaudia EscosteguyMônica MartinsCarla Lourenço Tavares de AndradeLetícia SoaresFlora CornishMeredith RosenthalEmma-Louise AvelingPublished in: Journal of clinical epidemiology (2024)
By centering patient experience, our novel, principles-based approach succeeded in promoting equity, diversity, and inclusion in LC survey research. These principles guiding patient-engaged collaboration have broad transferability. We encourage survey researchers working on chronic illness and in other contexts of marginalization and inequality to adopt them.