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Family caregivers of children and adolescents with rare diseases: a novel palliative care intervention.

Maureen E LyonJessica D ThompkinsKaren FratantoniJamie L FraserSandra E SchellingerLinda BriggsSarah FriebertSamar AounYao Iris ChengJichuan Wang
Published in: BMJ supportive & palliative care (2019)
FACE-Rare provides an innovative, structured approach for clinicians to deliver person-centred care.
Keyphrases
  • palliative care
  • advanced cancer
  • randomized controlled trial
  • healthcare
  • quality improvement
  • pain management
  • affordable care act